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“It is a brutal and incurable disease with an average life expectancy of 3 years”

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The cause of Charcot disease is not clearly established. To date, there is no cure for this disease.

Today, Amyotrophic Lateral Sclerosis (ALS) or “Charcot disease“Between 5,000 and 7,000 patients are affected, with an annual incidence close to 2.5 per 100,000 inhabitants. This neurodegenerative disease occurs most often from the age of 50 and affects peripheral muscles.

Gradually, this leads to paralysis of the muscles of the legs and arms. Charcot disease then causes paralysis of the respiratory muscles, swallowing, etc. “Remember, four people a day die from Charcot disease. (…) It is a cruel and incurable disease that brings the average life expectancy to three years“, emphasizes Dr. Christian Recchia. Of course, there is no cure, only some symptoms can be relieved. In most cases, patients die from respiratory infections.

Video – Olivier Goy with Charcot disease: “We tell you:” There is no cure. It was over in 3 years”

“Patients die too soon”

Where does this disease come from? “We don’t know about Charcot disease because patients die so quickly“, explains Dr. Recchia. At the moment, scientists have not identified the cause of the appearance of this disease, which is certainly multifaceted. Of course, Charcot disease is the result of environmental factors and factors of genetic susceptibility.”Tobacco, pollution and stress” may play a role, confirms Dr. Recchia.

The world is racing to find relief solutions for the patient. Today we have some hope. But I would say genetic engineering may be the solution to this pathology.“, Dr. Recchia hopes. The evolution of the disease is progressive, and it is not possible to predict how amyotrophic lateral sclerosis develops over time.

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Video – Olivier Goy, Charcot disease: “You are a prisoner of your body”

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